Volume 4, Issue 3, June 2015, Page: 125-131
Anticipatory Grief Among Close Relatives of Patients with ALS and MS
Agneta Grimby, Department of Medicine, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden
Åsa K. Johansson, Department of Medicine, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden
Ulf Johansson, Department of Medicine, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden
Received: Apr. 6, 2015;       Accepted: Apr. 26, 2015;       Published: May 16, 2015
DOI: 10.11648/j.pbs.20150403.16      View  4185      Downloads  112
A postal survey was sent to close relatives of Swedish patients with ALS and progressive MS to assess preparatory grief according to the Anticipatory Grief Scale (AGS), together with age, relationship, duration of the illnesses, perceived quality of care, present need of care, caregiver burden, and need of support. The relatives in the two illness groups generally responded in similar ways on the AGS, e.g. reporting closeness, preoccupation, tearfulness, and feelings of injustice regarding the illness. More MS relatives agreed on being irritable and wondering about life without the disease; they reported increased competence, but less ability to move ahead with life. The relatives’ need to talk to somebody outside the family and the hospital staff was more frequently reported by the MS relatives than by the ALS relatives. Overall, the need to talk correlated to feelings of loneliness, longing, tearfulness, loss of interest in daily activities, worries for the future, irritability and sleeping problems. However, surprisingly many of the ALS and MS relatives reported planning for the future and had discovered new personal resources after the diagnose, possibly indicating an overweight of responders adjusted to the situation and therefore expressing less sorrow.
Anticipatory Grief, ALS, MS, Close Relatives, Need of Care, Caregiver Burden, Support
To cite this article
Agneta Grimby, Åsa K. Johansson, Ulf Johansson, Anticipatory Grief Among Close Relatives of Patients with ALS and MS, Psychology and Behavioral Sciences. Vol. 4, No. 3, 2015, pp. 125-131. doi: 10.11648/j.pbs.20150403.16
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